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Statewide Parent Advocacy Network

News You Can Use

Taking Care of You! Conference for Essex Grandparents

Newark, NJ -- Grandparents residing in Essex County are invited to attend a conference that focuses on helping them take care of themselves, so that they are better caregivers for their grandchildren.   The “Taking Care of You!” health mini-conference will be held on Friday, May 10 from 8:30 AM to 2:00 PM at The CENTRE in Newark.  Co-hosts, the Statewide Parent Advocacy Network (SPAN) and the Essex County Family Council, in collaboration with Grandma KARES, Inc., are excited about this opportunity for grandparents to take a few minutes for themselves and enjoy a time of learning and sharing.

NJ Special Education Coalition Shares Action Steps on Code Changes

On April 22, 2013,  more than 1300 participants joined  the N.J. Special Education Stakeholder Coalition on conference call to review its positions on several changes to N.J. Administrative Code in the area of Special Education.  The call was hosted by Marie Blistan, from the New Jersey Education Association; Peg Kinsell, from the Statewide Parent Advocacy Network; and Jennifer Halper, representing Disability Rights New Jersey.

Police In Schools Is Not The Answer

In response to the National Rifle Association's release of a set of proposals to increase the number of armed personnel in schools, as a response to the tragic shooting at Sandy Hook Elementary School late last year, a grassroots organization are imploring schools and districts to implement positive approaches in response to gun violence and address the impact of school safety policies on young people.  In their Joint Issue Brief, "Police in Schools Is Not The Answer," the Alliance for Educational Justice, the Dignity in Schools Campaign and the NAACP Legal Defense and Educational Fund, Inc.

SPAN Perspectives

Social Security Announces New Online Services

on Sat, 04/27/2013 - 17:38

The Social Security Administration has expanded the services available with a My Social Security account, a personalized online account that people can use beginning in their working years and continuing throughout the time they receive Social Security benefits.  More than 60 million Social Security beneficiaries and Supplemental Security Income (SSI) recipients can now access their benefit verification letter, payment history, and earnings record instantly using their online account.

Unfair Access to Healthcare Affects Our Families, by Lauren Agoratus

on Sat, 04/27/2013 - 17:00

They call it “health disparities.”  What this means is any inequality in healthcare to underserved populations.  Sometimes it’s based on race, sex, gender identity, age, disability, or economic status discrimination.

Unequal care results in poorer health outcomes as the result of increased morbidity (illness/injury/consequences) and mortality (yes, death).  Children and adults are actually dying in the U.S.  because they can’t get the healthcare they need.  One particularly sad case involved a young boy with a toothache or eventually died due to infection complications. 

I first became

Parents to NJDOE: "Please Slow Down the Process"

on Mon, 03/25/2013 - 16:18

On March 6th The Statewide Parent Advocacy Network (SPAN) along with at least 50 other advocates, family members and one student who we will highlight in a minute went to the State Board of Education (SBOE) to discuss the proposed changes to 6A:14 the Special Education Regulations.  Below is a summary of the comments made by SPAN Policy Director, Peg Kinsell:

Although many folks had different issues they wanted to highlight, one theme ran throughout, "Please Slow Down the Process." Almost every speaker questioned what the hurry was since there is no pending legislation, litigation, or major

Taking Care of You! Conference for Essex Grandparents

Newark, NJ -- Grandparents residing in Essex County are invited to attend a conference that focuses on helping them take care of themselves, so that they are better caregivers for their grandchildren.   The “Taking Care of You!” health mini-conference will be held on Friday, May 10 from 8:30 AM to 2:00 PM at The CENTRE in Newark.  Co-hosts, the Statewide Parent Advocacy Network (SPAN) and the Essex County Family Council, in collaboration with Grandma KARES, Inc., are excited about this opportunity for grandparents to take a few minutes for themselves and enjoy a time of learning and sharing.

NJ Special Education Coalition Shares Action Steps on Code Changes

On April 22, 2013,  more than 1300 participants joined  the N.J. Special Education Stakeholder Coalition on conference call to review its positions on several changes to N.J. Administrative Code in the area of Special Education.  The call was hosted by Marie Blistan, from the New Jersey Education Association; Peg Kinsell, from the Statewide Parent Advocacy Network; and Jennifer Halper, representing Disability Rights New Jersey.

Police In Schools Is Not The Answer

In response to the National Rifle Association's release of a set of proposals to increase the number of armed personnel in schools, as a response to the tragic shooting at Sandy Hook Elementary School late last year, a grassroots organization are imploring schools and districts to implement positive approaches in response to gun violence and address the impact of school safety policies on young people.  In their Joint Issue Brief, "Police in Schools Is Not The Answer," the Alliance for Educational Justice, the Dignity in Schools Campaign and the NAACP Legal Defense and Educational Fund, Inc.

SPAN's Myriam Alizo on Univision Education Special

On March 23, SPAN's own Myriam Alizo joined Primer Impacto’s co-anchor Barbara Bermudo and her husband, Univision 23 news anchor Mario Andres Moreno, for the next education special: Estudiante Unico.  On this one-hour special the hosts shared some of their own experiences as parents as well as interviewed expert guests on how parents can leverage each student’s uniqueness.  The show highlighted various ways parents can help recognize a child’s needs and strengths and better communicate this information with school personnel in order to help ensure their children’s academic success.

Make Your Voices Heard: Changes to NJ Special Education Code

On February 27, Peg Kinsell, SPAN Public Policy Director, Jennifer Halper, Senior Staff Attorney and Legislative Coordinator of Disability Rights New Jersey were joined by more than 150 parents and advocates as they discussed the proposed changes to the state special education code and how they will impact that will impact parents and students rights, as well as the quality of programs and related services for students with disabilities.  For details on the proposed changes, see the white paper developed by a coalition of parents, educators and advocates and also additional information from

New USDE Rules on Schools Billing Medicaid for IEP Services

What's Happened?  New regulations from the US Department of Education now make it easier for schools to bill Medicaid for related services provided at school as part of a child's Individualized Educational Plan (IEP).  These regulations now only require parental consent the first time that the school plans to bill Medicaid, and at any time that there are changes in the amount or type of related services that could impact Medicaid billing.  They also require that the school provide notice at least annually to the parent that they have provided this consent.  You can find the new regulations, a

Statewide Parent to Parent Support

The DCF Commissioner recently announced support for a Mom 2 Mom Program, a call center for families of children with disabilities experiencing stress and mental health concerns.  The role of Mom 2 Mom is to assess mental health risks and then connect families of children with developmental disabilities to mental health and other service providers.  This will meet an important need of families who have children with disabilities.  The services available through Mom 2 Mom will not include advocacy to help families access the services and supports their child and family need.

USDE Resources on ESEA Flex Waivers

The US DOE has developed a set of materials that provide an overview of the Elementary and Secondary Education Act (ESEA) flexibility process, also known as ESEA waivers, by which 34 states (including NJ) and DC have applied for and received flexibility on certain provisions of ESEA.  These materials, a brochure and five companion fact sheets, try to explain the rationale and intent of ESEA flexibility, as well as address key components and highlight plan elements for a number of states approved for flexibility. The brochure and fact sheets can be found on the Department's updated ESEA

When Violence Strikes

We are very saddened to hear of the tragic shootings at Sandy Hook Elementary School in Newtown, Connecticut and send our sincere thoughts and condolences. Tragic events such as this one are very challenging for families, schools and entire communities. As we try to help our children find some comfort and sense of safety in the face of such tragey, these excellent resources from The Center for School Mental Health  related to school crisis response are free and readily available:  Resources for Dealing with Traumatic Events at Schools.  You can also get useful information from the Substance

Families Helping Families

Helping out during the tough times can help us all to move toward recovery and restoration.  Check in on friends and neighbors, especially the elderly, those who don't have family nearby, who may have a disability or emotional needs, or who you you just haven't heard from in the last few days.  Drop off some groceries or a meal, help them clean up, or stop by for a chat.

Also, here are some agencies where you can volunteer or make a donation:

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